Starting a new medication or supplement? Want to report effects of a specific treatment?
Fill out these questionnaires to help track efficacy & safety!
First, I want to say THANK YOU to everyone who subscribed here! I consider us one big research family: Each and every one of you is so important for pushing progress forward and helping to find a cure for Long Covid and ME/CFS.
Now, down to business. Many of you are experimenting with new supplements, medications, or non-pharmacological interventions for Long Covid or ME/CFS. So far, I have surveyed various treatments retrospectively. What about surveying treatments prospectively to get more accurate information? That is, you will take a brief Pre-Treatment Questionnaire just before you start a new treatment to establish your current baseline, then answer the same questions again after a sufficient trial in a so-called “Post-Treatment Questionnaire.”
What if you already tried a new treatment and you just want to report how it affected you? That’s also an option! Just skip the pre-treatment survey & go directly to the Post-Treatment Questionnaire: the survey will guide you through a modified set of questions especially for those who couldn’t fill out the pre-treatment survey first.
The surveys should not take you more than 5 minutes to complete.
As I collect more data, I will track, compile and analyze your responses.
So in summary:
Establish your pre-treatment baseline by filling out this quick Pre-Treatment Questionnaire. This is ideal but not mandatory.
Once you have a good idea of how the treatment has worked for you, fill out the Post-Treatment Questionnaire.
If/when I collect enough meaningful data to identify any trends or patterns, I will share and/or publish the results. My hope is that these questionnaires may generate data that could potentially help guide clinical trials or treatment protocols. In fact, I may have some very exciting news to share with you all soon regarding data analysis of my surveys—stayed tuned!
Some supplements and drugs for which we particularly need more data are listed above. I strongly encourage you to go ahead and fill out a post-treatment questionnaire for any of these (one questionnaire per treatment), or anything else you’ve tried. The more data I collect, the better the information, and the higher the probability we may glean helpful information.
Thanks again to all of you for participating in this patient-led research effort!
Martha